DISABILITY ORGANIZATIONS

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Birth Condition Associations

Achondroplasia www.achondroplasia.co.uk
Anencephaly www.nationalautismassociation.org
Autism www.autism-society.org
CAT Eye Syndrome www.nt.net/a815/cateye.htm
Cerebral Palsy www.ucp.org
CHARGE Syndrome www.chargesyndrome.org
Cleft Lip & Palate www.widesmiles.org
Cleft Lip & Palate www.operationsmile..org
Cystic Fibrosis www.cff.org
Down Syndrome www.ndss.org
Down Syndrome www.nads.org
Dwarfism www.dwarfism.org
Fetal Alcohol Spectrum Disorder www.faslink.org
Fragile X Syndrome www.fragilex.org
Hydrocephalus www.hydrocephalus.org
Hydrocephalus www.hydroassoc.org
Marfan Syndrome www.marfan.org
Muscular Dystrophy www.mdausa.org
National Information Center for Children and Youth with Disabilities www.nichy.org
National Organization for Rare Diseases
www.rarediseases.org
Prader-Willi Syndrome Association www.pwsausa.org
Sickle Cell www.scinfo.org
Sickle Cell www.sicklecellsociety.org
Spina Bifida www.sbaa.org
Spina Bifida and Hydrocephalus Association of Canada
www.sbhac.ca
Tay-Sachs & Allied Diseases www.ntsad.org
Thalassemia www.thalassemia.org
Trisomy (1-22) http://livingwithtrisomy.org
Trisomy 13 http://www.livingwithtrisomy13.org
Trisomy 18 http://www.trisomy18.org
Treacher Collins Syndrome www.treachercollins.org
Turner Syndrome www.turnersyndrome.org
Vaters Syndrome www.communities.ninemsn.com

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Advocacy and Research Associations

C.A.S.T. for Kids Foundation www.castforkids.org
Center for the Study of Autism www.autism.org
Cure Autism Now Foundation www.cureautism.now
Birth Defect Research for Children, Inc.
www.birthdefects.org
Council for Exceptional Children www.cec.sped.org
Disabilities Studies and Services Center www.dssc.org
Family Voices www.familyvoices.org
Get Kids Going www.getkidsgoing.com
Jeremiah Cromwell Disabilities Center
www.cromwellcenter.org
Kiddies Rehab International www.kiddiesrehab.org
March of Dimes www.marchofdimes.com
National Lekotek Center www.lekotek.org
Nemours Foundation www.kidshealth.org
Our Kids www.our-kids.org
Pediatric Development and Behavior www.dbpeds.org
Personal Ponies Ltd., Inc. www.personalponies.org
Ronald McDonald House Charities www.rmhc.com
Sports for Kids Foundation www.sportsforkids.org
Teratology Society www.teratology.org

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